white-knuckling the broomstick I’m exhausted. I’ve been exhausted for a while… for years really. In the spring of 2012, I was exhausted, per usual–and with great frustration, sucked up a few ounces of energy to implore the help of doctors… Continue reading

Thursday I called Dr. T’s office (taste/smell specialist) and was able to get an appointment the next day–I took it. I needed to get this follow-up in because the window for nerve recovery is closing; after a year, the possibility… Continue reading

Monday I called to schedule a follow-up appointment with Dr. S to determine how the medication for Syndrome X was working. The choice in dates: locally in April or UIHC on Wednesday. It really seemed like God had opened a… Continue reading

It may have been the Australian accent, or the fact that I was so filled with hope it was oozing out my ears impairing my hearing, but I had misunderstood Dr. L at my first appointment: I do not have… Continue reading

I have various symptom diaries that date from July 1996 through August 2013:-Spreadsheets with simple checkmarks.-Calendars with exhausted, nearly unreadable scrawbles.-Boxes filled in to represent mild-moderate-severe.-Specific:  exact moment, ounce or mL.-Apps too time consuming to continue.The symptoms were spontaneous in nature occurring… Continue reading

NEW NOSE…my patient ID sticker read: NEW NOSE.  I was thrilled. I realize it meant I was a ‘new’ patient with a ‘nose’ issue, but God is known for restoration and if I’m going to have an ID that reads:… Continue reading

edited Nov 1st 2013 Opsoclonus Myclonus Syndrome  aka: Dancing Eyes, Dancing Feet Syndrome I’d been slightly symptomatic all Friday morning, but trusted God whether or not I’d be symptomatic in the dotctors’ presence. I went through hours of waiting and… Continue reading

       Oh Lord, you have thoroughly looked at every bit of my heart and know absolutely everything about me there is to know. You know me when I sit, stand walk and cry…and you know every single thought that’s in… Continue reading

Last Tuesday as I was praying about my appointment, God impressed upon me that I needed to ‘lay my Isaac down’–my desire for an answer was surpassing my desire for a relationship with Him. How do I do that?  Show… Continue reading