edited Nov 1st 2013
aka: Dancing Eyes, Dancing Feet Syndrome
I’d been slightly symptomatic all Friday morning, but trusted God whether or not I’d be symptomatic in the dotctors’ presence. I went through hours of waiting and intense testing. I’d explained my history and presented video evidence several times. Then, right before a basic ‘follow the red paddle with your eyes’ test, I wheezed, just a little one, but I knew what this meant: the eyes were soon to follow. And it happened. In the midst of following the red paddle with my eyes, they started dancing.
Dr. L put down the paddle and, with his smooth Australian accent, said, “
What’s going on What could be happening is Opsoclonus Myclonus.”
He went on to explain the causes (which sound absolutely lovely in an Australian accent):
A) paraneoplastic (cancer) = find the tumors and eradicate them
B) parainfections (infection) = corticosteroids, ACTH, etc.
C) idiopathic (unknown) = continue to deal with the symptoms
For me, the symptoms started when I had a case of Mono, so I’m leaning toward “B.”
Dr. L was quite interested in the videos and insisted I send him copies (the video person was out for the day) so that he could show them confer with his colleagues–including his mentor who is a world-renowned expert in eye movement–not just an expert in the United States, but in the world! How’s that for God setting me up with the best!
A vial of blood was drawn that will differentiate between tumor or infection and was sent to Mayo for processing (11-21 day turnaround). Dr. L will call once the results are in to determine the next course of action.
Here’s a video of my Dancing Eyes (which appear as though they’ve forgotten their choreography). I was awakened at 2:30 one morning with a racing heart, huge itchy patch that nearly covered my entire foot and, of course, chaotic eye movement…this is not Dancing With the Stars. Well, maybe it is, I did get the USP Walk of Fame award last night (busy weekend).
“I’d like to present to you: Lisa and her ‘Dancing Eyes’. I hope you enjoy the show.”