Latest Posts
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Half a Merry Christmas
The pre-lit tree got put up, but the lights on top didn’t work. I finagled but ended up stringing lights over the dark branches. A week later the bottom lights went out. I didn’t have the energy to decorate…I knew… Continue reading
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A Birthday Gift
This week, my Aunt Janice turned 67! Last year, on December 19th, the weather was stormy, but I braved a trip to the Dollar Tree after work and got her some birthday trinkets–she was thrilled momentarily but was… Continue reading
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I’ve got rhythm….
My heart pounds, skips and races most of the time and keeps me from sleeping–I’m thrilled to get a solid 45 minutes before the sudden pounding begins, and keeps me awake for hours in the middle of the… Continue reading
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I’m a Hypo-Hypo
white-knuckling the broomstick I’m exhausted. I’ve been exhausted for a while… for years really. In the spring of 2012, I was exhausted, per usual–and with great frustration, sucked up a few ounces of energy to implore the help of doctors… Continue reading
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Nose News–Doin’ Better Than a Monkey
Thursday I called Dr. T’s office (taste/smell specialist) and was able to get an appointment the next day–I took it. I needed to get this follow-up in because the window for nerve recovery is closing; after a year, the possibility… Continue reading
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How Low Can It Go?
Monday I called to schedule a follow-up appointment with Dr. S to determine how the medication for Syndrome X was working. The choice in dates: locally in April or UIHC on Wednesday. It really seemed like God had opened a… Continue reading
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Lost in Translation & a Phonemic Faux Pas
It may have been the Australian accent, or the fact that I was so filled with hope it was oozing out my ears impairing my hearing, but I had misunderstood Dr. L at my first appointment: I do not have… Continue reading
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Heal Me — My God, My God, Why?
Thursday, I got a call from my doctor’s assistant: I don’t have cancer and the side effects of the medications for the eye movement outweigh the benefits, so I just need to continue on. I’m not in the ICU so… Continue reading
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Spontaneous Symptom Swapout…Fruitfulness
I have various symptom diaries that date from July 1996 through August 2013:-Spreadsheets with simple checkmarks.-Calendars with exhausted, nearly unreadable scrawbles.-Boxes filled in to represent mild-moderate-severe.-Specific: exact moment, ounce or mL.-Apps too time consuming to continue.The symptoms were spontaneous in nature occurring… Continue reading
