Latest Posts

  • Sister-Sister

    Happy Birthday Dear Lynda! This morning a friend suggested I drive the three and a half hours to surprise my sister for her birthday.  I highly considered it, until I remembered how exhausted I get. My phone call with her… Continue reading

  • A Grief Observed

    No one told me about the inescapable, overwhelming exhaustion… emergency naps lasting for hours…involuntary yawns reaching deep without warning…brain fog making accessing ordinary words difficult.  I knew about the contentment upon waking lasting for mere seconds…  playfully enticing me into happiness… … Continue reading

  • How Are You?

    You ask because you care… Sometimes I feel so puny and weary, I have difficulty accessing the word that perfectly describes how I feel and land on ‘fine’ or ‘okay’. Feelings are fickle; ‘fine’ and ‘okay’ are vague. After Sykping with my… Continue reading

  • Out of the Mouths of Children

    I was exhausted during a trip back from Mayo, having been away from home and my ailing mother for just over 27 hours, so I stopped at my brother’s for a quick nap.  Upon waking, these little lovelies implored  me… Continue reading

  • A Matter of Time

    My father is a car person, so growing up, it was common to have copies of the Kelley Blue Book at our house — references to this guidebook and its contents were, and still are, a familiar part of our… Continue reading

  • The Race

    Mom is determined to finish her race strong. On Sunday, with the help of a small village, she went to church–prayed and praised–and was exhausted to the marrow of her bones–resulting in a deep slack-jawed sleep {I won’t post pictures}.  A… Continue reading

  • A Rare Day

    The Pink Zebra It was that gnawing feeling, that I was forgetting something… something about Leap Day…an unusual day…a rare day. Then is struck me: Rare Disease Day. It’s on the last day of February every year, and it was four… Continue reading

  • Ginger Up

    I thought I was being original…ginger juice, lemon juice, cayenne pepper, sweetener (Manuka honey/stevia) in a little glass that could be deftly thrown into the throat and downed with one swallow…I would call my creation: The Ginger Shot.  I was… Continue reading

  • Weary

    One of my ‘unmentionables’ is on my kitchen table…I don’t remember how it got there, but I do know it’s presence is a glaring indicator of my chaotic life.  Since the beginning of the year, I’ve resolved to change and be… Continue reading