carcinoid

  • A Rare Day

    The Pink Zebra It was that gnawing feeling, that I was forgetting something… something about Leap Day…an unusual day…a rare day. Then is struck me: Rare Disease Day. It’s on the last day of February every year, and it was four… Continue reading

  • How Are You Feeling?

    I’m feeling better than I did a month ago And it’s not just because it’s summer break Two years ago ‘the beast’ was named: Carcinoid Syndrome And  I was in a clinical trial waiting for the Ga68 Scan A year… Continue reading

  • The Ususal

         For the past three days I’ve awakened nauseous and feeling like I was hit by a truck — which really isn’t that unusual for me.  After so many years of waking up feeling like this, I don’t remember… Continue reading

  • RSVP

    Today I got the nine page consent document for the 68Ga scan in the mail. I had been told it would probably be the middle of June when I received the consent. How can I not be excited? Now I… Continue reading